Max is three months old today!
He is doing well. We have been back in the NICU for a week now, and so thankful. After all the major changes made before, during and after surgery it feels like we are going very very slow now! There isn't much new on a daily basis. Right now he is on all the meeds he will likely go home on. We need to get his lasix dose cut in half of what it is currently, and that is the major goal. He will probably come home on oxygen, which we are fine with...just get him home safely!
We have our fantastic primary nurse Becky back! Mr. Max gave her a hard time today, but I think he is secretly happy to see her. Occupational Therapy (OT) is going to start working on bottle feeds again. Physical Therapy (PT) is going to be working with him as well, laying in a bed for three months sets a kid back! Music Therapy has put an IPod in his bed and he responds well to the music. They are all still very confused by his breath holding spells and random fevers, so they are working with neurology to see if they can control it with medicine at all.
On Monday, Gunner's daycare was closed, so I got to stay home all day with him and we had a fantastic time! We did some shopping, went to the fabric store so that I could make some blankets for the "blankets from the heart" program and Gunner picked out some robot fabric for himself! We went to the pool, and I thought he was going to take off swimming! He was a total champ, not afraid of the water at all. We played outside with bubbles...it was just a great day, way over due!
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