I've had requests for an update, sorry it has taken so long. Max has been home for a little over a month and doing great! He is still having his spells, but he is having them less frequently and they seem less severe. All of his doctors, thus far, have commented that he is doing better than he expected...we aren't sure how to take that :o).
We were able to get Max's 6 month pictures done by the FABULOUS Rebecca Peters. Keep an eye out on her blog for the pictures, RebeccaPetersBlog.com. She took some with Gunner, Doug, and I as well. We unfortunately didn't have Makayla with us during the pics, but we'll get family pictures later.
Max is still growing like crazy. They have limited his caloric intake. They don't want him gaining too much weight since his muscle development is behind. Hopefully they will be able to get his physical therapy and occupational therapy started soon!
He's going to daycare now. WE were a little concerned about him attending daycare instead of staying home with a nurse. Not because we didn't trust out babysitter, Angie, but because we weren't sure how he would react to the commotion of the other kids. He's doing great! He seems to love it there! All the kids love him. He watches them and shows interest in what they are playing, so ultimately I think it is a blessing that we didn't qualify for nursing care!
Gunner and Makayla are doing well with Max as well. Makayla is super nurturing, always has been. She is great with both him and Gunner. Gunner is very loving with Max, but having jealousy issues. He is gentle and sweet to Max, but has started refusing to sleep. We have to rock him until he is completely asleep, and then he usually climbs into bed with Doug and I at some point throughout the night. Any suggestions would be welcome! Right now we are trying bribery...if he sleeps throughout the night in his own bed, he gets candy in the morning. It doesn't work usually.
Makayla is on the gymnastics team. She really seems to enjoy it. I can't wait to go to her first meet. She is in pre-school and loves it. Gunner is also taking tumbling, but doesn't love it quite as much as his sister :o)
I guess that is our major update! God Bless to all!
Friday, September 30, 2011
Sunday, September 4, 2011
Max is home
OK, sorry for taking so long to update everyone on Max's status. He is doing so well. We have been home for two weeks now and we see improvements everyday.
We came home on August 21st, one day before his 5 month birthday, and were greeted by the entire neighborhood outside waving streamers, with signs in our yard, etc. It was quite the welcome home! He is on several monitors, an apnea and pulse-ox, and of course his oxygen. He sleeps well through the night. We have in-home nursing for at least the first 3 weeks, which is nice for our comfort level. He is averaging 2-4 spells a day, but he only had one yesterday and hasn't had any so far today!
He is gaining weight, and has started to try to lift his head. This morning he found his voice and it is so funny to listen to the noises he makes! We love having him home. We are slightly sleep deprived, but wouldn't trade all the sleep in the world for these moments!
Yesterday we celebrated Makayla and Gunner's birthdays with Doug's parents and grandparents. Just having them in the house was quite a bit of commotion for Max and he was rather fussy, but, with the exception of the one spell, handled it all very well. He slept most of today to make up for it.
I have one week left in my leave, then I have to go back to work. I'm going to miss being home with him, but am looking forward to getting into a regular family routine for all of us.
Being at home and watching the daily improvements with Max makes it so easy to see how blessed we are, and all the healing that God has provided for our family.
We came home on August 21st, one day before his 5 month birthday, and were greeted by the entire neighborhood outside waving streamers, with signs in our yard, etc. It was quite the welcome home! He is on several monitors, an apnea and pulse-ox, and of course his oxygen. He sleeps well through the night. We have in-home nursing for at least the first 3 weeks, which is nice for our comfort level. He is averaging 2-4 spells a day, but he only had one yesterday and hasn't had any so far today!
He is gaining weight, and has started to try to lift his head. This morning he found his voice and it is so funny to listen to the noises he makes! We love having him home. We are slightly sleep deprived, but wouldn't trade all the sleep in the world for these moments!
Yesterday we celebrated Makayla and Gunner's birthdays with Doug's parents and grandparents. Just having them in the house was quite a bit of commotion for Max and he was rather fussy, but, with the exception of the one spell, handled it all very well. He slept most of today to make up for it.
I have one week left in my leave, then I have to go back to work. I'm going to miss being home with him, but am looking forward to getting into a regular family routine for all of us.
Being at home and watching the daily improvements with Max makes it so easy to see how blessed we are, and all the healing that God has provided for our family.
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