We had a good weekend. Max was doing well, and we spent Saturday in Salisbury for Doug's friend, Tony's wedding. The wedding was beautiful, as was the bride, and the dance was a lot of fun.
Max is extubated, and his blood gases are looking better than they ever have. The have weaned him off of two anti-convulsants. He is only on Keppra, and will probably be on that for a month or so. If he goes that long without a seizure, then they will start weaning him off of it as well.
They are doing head ultrasounds twice a week to measure they size of his ventricles. It is one of the signs of hydrocephaly that they are monitoring. They feel the ventricles are still dilating, and we have a meeting set up on Wednesday to talk to the neurosurgeon about the pro's and con's of a shunt. We obviously don't want to have to do that, however we need to have all the information before we can make a decision. Some of the other signs they look for are the head circumference and the feel of his fontanel. A typical head will grow half a centimeter each week, his has grown less than that, and his fontanel isn't too full, so I don't really know what to think.
They are also starting a blood panel to test for an immunological deficiency. They ran one last week and his IgM levels were low, however his t-cells, IgG, and IgA were normal. The IgG and IgA levels could be reflecting the antibodies he receives from me, so they are going to specifically test for antibodies he produces, and to see if he is showing an immune response to the vaccinations he received at two months. Pray for good results, being immune compromised is the last thing he needs on top of everything else.
Other than that, all is the same. We will be back in Salisbury for Max's benefit on Sunday. We look forward to seeing everyone again. I'll update as we get more information.
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