We had our meeting with the neurosurgeon and our team of doctors this week. They gave us better news than we were expecting. The neurosurgeon, Dr. Ichbas, doesn't think he needs a shunt right now...not to say he won't in the future. But for now they are going to just keep monitoring him, so Yay! The Immunologist was there as well. They did confirm that his total B-cell count was lo in the 70's when they want them above 300. But once again he has them all confused, they noted that his IgM levels were low, but his IgG and IgA levels were normal. IgM is a precursor to IgG and IgA, so not sure what that means. His IgG levels may be partially from me, after 6 months IgG levels that he received from me will be going down, so we may understand more around then. They did confirm that he is making his own IgG and IgA, so that is the important part.
As of today, he has no I.V. meds! His Keppra and Adavan are now oral (through the feeding tube). He is up on his feeds to 100mls every three hours. He is doing really well!
So, the prayers are working, keep them coming! Thank you all, we love you!
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