There isn't much new going on with Max. They still don't know what was going on with him, but he is showing improvement. I did have them test him for toxoplasmosis, but it had to be sent to a testing lab in California, so it will be a week or so before we know those results. They are also testing his spinal fluid for neurotransmitters and metabolites. Both of those tests take 10 days.
Yesterday they cut one of his three anti-seizure meds in half. So far no seizures! They are going to continue to slowly cut the meeds and see how he reacts. Once they feel confident he is seizure free they will talk about extubating him.
His GI tract is still a little messed up, but that is hopefully going to get better on its own, since there is still "movement" they aren't that concerned about it.
We are trying to have fun with Gunner and Makayla this weekend. With all that is going on we haven't been able to spend much time with them this summer. We cancelled our usual summer trips to Texas and St.Louis, so we are trying to find fun around KC. Today we went to the zoo, then visited Max in the afternoon. Tomorrow and Monday we will visit Max in the morning then go swimming and fishing, before we do fireworks on Monday evening. Hope everyone has a happy 4th of July and God Bless!
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